Identifier to cite or link to this item: http://hdl.handle.net/20.500.13003/18035
Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis
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Document typeresearch article
CitationGayà-Barroso A, González-Moreno J, Rodríguez A, Ripoll-Vera T, Losada-López I, Gili M, et al. Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis. Int J Environ Res Public Health. 2022 Apr;19(8):4464.
This study was designed to investigate the global utilization of occupational therapy (OT) services by patients with hereditary transthyretin amyloidosis (ATTRv) in Spain. The main objective was to find out whether these patients have access to OT services and the types of interventions being offered to them, together with their satisfaction and real benefits as users. We developed an online questionnaire which was distributed to patients with ATTRv in Spain through patient associations. Seventy-four patients with a diagnosis of ATTRv residing in Spain participated in the study. Thirteen had already used OT services at least once, felt that OT interventions improved their quality of life, would recommend OT services to others, and would return to see an occupational therapist. However, 61 had never used this type of service before. Of these, 35 knew what OT is and 13 declared that they considered that OT interventions in ATTRv could be positive for them. The results suggest that the use of OT services by ATTRv patients is low, mainly because of the lack of information about the occupational profile of individuals with this disease. The low response rate obtained for the survey limits generalization, and thus further research to confirm these preliminary findings is needed.
MeSHQuality of Life
Amyloid Neuropathies, Familial
Surveys and Questionnaires
DeCSNeuropatías Amiloides Familiares
Calidad de Vida
Encuestas y Cuestionarios
This item appears in following Docusalut collectionsInstituto de Investigación Sanitaria Islas Baleares - IDISBA > Comunicación científica
Hospital Universitario Son Llàtzer - HUSLL > Comunicación científica